My Thoughts
My Thoughts
is where I will share the knowledge I have learned through my
experiences with COPD. I
am often at odds with the professions and systems delivering the
care we need. I struggle
with, “Who am I to say the present system of care encourages those
with COPD to sit on the couch, which leads to a lower quality of
life, deconditioning, exasperations, hospitalizations and death?”
The answer, “I need to because I have been on
the road to a lower quality of life, deconditioning, and mild
exasperations before I found a better road and would like to help
others!” For me
the road to a better quality of life while improving my health was
learning how to get the oxygen I need to stay active!
It is that simple, we may stay active if we have the oxygen
and support needed to do it!
It is so simple but a tough climb because of the roadblocks
and difficulties put in our way by the present system.
·
Those with COPD should have a sp02
of 88% to 92%. No!
We need to go both above and below that.
·
We need to know how to use an
oximeter and have a realistic knowledge of blood oxygen levels.
·
Many of us are not able to get the
oxygen we need from portable oxygen concentrators and the best
option for us is liquid oxygen.
We need liquid oxygen to be more available!
·
Oxygen requires a prescription.
Poc settings need to be equivalent to LPM so we know if a poc
will fill our prescription or not.
·
We need to stay motivated and active
which is extremely difficult if we don’t have the needed oxygen.
·
With the needed oxygen it is easier
to be motivated and remain active!
The medical system falls flat on its face when
it comes to COPD and quality of life!!!
I know the present medical system for those with COPD lowers
our quality of life, but I also know it does a good job of keeping
us alive. More horse
sense is needed.
2018 Performance Function Test